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Client Spotlight: Living with Ataxia Telangiectasia

1/29/2020

2 Comments

 
by Claire Stanley, one of our studio heros
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Heather and Claire

I’m not sure what Heather thought when she saw me walk into the studio clutching my husband’s arm for stability. All I can say for sure is that my stomach was fluttering from excitement and nerves. I was excited to start my Pilates journey but nervous that my body wouldn’t let me. See, I’m not used to having an uncooperative body ….

Growing up in a small English town was wonderful. I did everything you’d expect in childhood-- played sports (LaCrosse was a favorite), sang in the choir, went skiing, and danced. I even had a stereotypical horse phase. But where I really excelled was school. Head Librarian, house prefect, school prefect, house points cup winner: yes, I was a bit of a Hermione Granger. If there was a way to make something a competition, I was sure to find a way to win. So when my family relocated to Texas in 2004, I wasn’t too worried. After all, it was just a new place for me to shine. In fact, I was excited to move as it gave me the chance to try an All-American sport: cheerleading. I only spent a season on my middle school team, but doing so helped solidify my love of performing. During high school, I discovered drama and musical theatre and the stage soon became my home. Of course, academics were still very important to me, and when I got into my dream university (which my college counselor said was a shot in the dark), I was over the moon. I went off to Vanderbilt University in fall 2009 to study Child Development and Theatre, wearing heels and make-up, and feeling like an adult.

In Nashville, I led the life of a typical co-ed. I graduated after landing a summer internship at a local children’s theatre. There, I dreamt of pursuing a career in Drama Therapy, combining my love of psychology, theatre, and kids. But a year later I was back in Fort Worth, meeting my future husband and working at the children’s museum. Part of me knew I’d be staying in Fort Worth for the foreseeable future. I thought love and family would be the main things keeping me here. Little did I know there would be more.

When I was a young child my teachers had noticed “overflow movements” but doctors were unconcerned and assured my parents that I’d grow out of it. Honestly, I never noticed, and it never bothered me as was evident from the dance and theatre. In college, Student Health referred me to a neurologist after I had issues with my eyes but I was given the all clear. I still thought everything was fine. Sometime after moving to Texas again, I quit wearing heels and my gait began to widen. Jump forward to 2016. In May I quit my job and in October, I finally got an answer: Ataxia Telangiectasia.

Okay, time out. What is Ataxia Telangiectasia? Well. A-T (as it is more commonly abbreviated) is a super rare (1 in 40,000--100.000) debilitating, life-shortening, genetic, neuromuscular disease. It affects gait, balance, stability, and muscle strength, and sometimes involves the immune system. Oh yeah, and it’s a childhood disease. Its onset is usually seen between age 2 and 5, leaving most patients wheelchair reliant by about age 10. Yet there I was, an otherwise healthy 25-year-old adult, receiving the worst news of my life.

I didn’t have much time to process my new diagnosis; I had a wedding to plan. And a honeymoon. Then a new job. Basically, I didn’t have time because I didn’t want to have time. I still had so many things I wanted to do, and I didn’t want A-T inhibiting me. I kept on denying and making excuses until I couldn’t deny anymore. So, in July of 2019 I called Heather at The Pilates Center, and made an appointment to work on me.

As I ventured onto the reformer for the first time, I tried to explain the weird mutation that’s robbing my life of normality. I remember feeling self-conscious but something in all the staff’s kindness and supportiveness kept me coming back. The Pilates Center has not only helped to increase my stability, but has also given me renewed sense of purpose and confidence. I definitely feel stronger, and I hope that strength will keep me out of a wheelchair. Plus, I am seeing a real “Pilates’ body,” which I love and I know my husband adores…
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As much as I grumble during my sessions, as much as the stretch may hurt, I really do love Pilates. During the six months that I have been at the studio, I have found it easier and easier to stabilize during hip work. I have also noticed an endurance increase.. Even though it’s super difficult, and I STILL can’t keep my legs completely straight, I enjoy working on my teaser (partly because of how impressive it looks). The perfectionist in me finds it hard to do exercises I know I’m bad at, but the way I feel after a session keeps me coming back for more.

Most people have never seen ataxia, let alone Ataxia Telangiectasia, so they don’t know how to react to me. People know how to act about a broken bone, and at least they understand what diabetes or cancer is. But seeing a woman who looks drunk when she walks across the room is different and scary for the majority of people. So now, do a little something for me: go to atcp.org and educate yourself. Don’t assume. And most importantly, be kind.
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Relationship Boosters That Work

1/19/2020

5 Comments

 
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At The Pilates Center Fort Worth, we train people from ALL walks of life- men AND women! Many of you have brought a friend or significant other along, and more and more research is showing the huge benefits of working out as a couple. Whether you sign up together to a group class, or schedule a duet session, research shows that working out as a couple improves not only your physical health but the health of your relationship as well, and just in time for upcoming Valentines Day!

  1. Increases happiness and attraction within the relationship: A study from the State University of New York StonyBrook found that when couples participated in an exciting physical challenge or activity, they reported feeling more satisfied and more in love with their partner. Getting up and moving together puts the body in a state of physiological arousal, which drives romantic attraction.

  1. Increases fitness performance: Research consistently shows that working out with another person--particularly a romantic partner--- will make you perform better than if you were working out alone. This might be because people push themselves harder when someone is watching, or because people are more motivated when their partner is there. Regardless, working out as a couple helps both of you!

  1. Increases each other’s long term health: A 2015 study from the Journal of the American Medical Association Internal Medicine found that when one romantic partner made a health-related change for the better, the other was likely to follow suit, and that if both partners were committed to exercising regularly and being involved in each other’s health journeys, the odds were higher that both partners would stuck to their fitness programs.

  1. Deepens your bond: A really interesting study out of the British Psychological Society found that performing the same workout as your partner may increase bonding at a subconscious level, simply by completing the same movements. The idea is predicated on “bonding mimicry” which is a fancy way of saying that a way that humans imitate each other’s body language when they’re trying to make others feel comfortable. In the study, when the same movements were performed by both partners during a workout, the bond that mimicry creates was intensified between the couple.

  1. Helps you enjoy exercise more: Some days you may feel like just staying curled up on the couch rather than heading to the studio for class. Grab your partner and head out! Studies have shown that when workouts were done with a spouse or partner, participants reported having more fun and being happier than when they worked out alone.

  1. Increases quality time together: Let’s face it, there are only so many hours in the day. The speed and chaos of everyday life can make it hard to carve out alone time with your spouse or partner. If you both already have exercise time built into days, why not use that time together? More quality time in your relationship builds intimacy, opens communication, and strengthens your bond.

  1. Improves your sex life: Last but certainly not least, regular workouts can do wonders for your sex life. A study out of the University of California found that for men, regular exercise significantly enhanced the frequency of intimate activities and the reliability of adequate functioning during sex. Similarly for women, a University of Texas study found that workouts increased sex drive significantly, likely stemming from an increase in overall energy.
Looking to enhance your relationship outside of the studio as well? Massage with essential oils can promote bonding and a better mood in your relationship, and Young Living has THE best line of massage oils. I love to use the Relaxation Blend, which is a soothing and mood-easing blend of Lavender, Tangerine, Coriander, and Spearmint. If you’re looking for something more on the romantic and playful side, I love YL’s Sensation Massage Oil, which blends Ylang Ylang, Jasmine, and Geranium to add playfulness to your one on one time.  Couple a bottle of this massage oil with a few duet Pilates sessions, and your Valentine is sure to feel the love.
5 Comments

Rest and Recovery

1/2/2020

1 Comment

 
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It’s that time! With 2020 upon us, resolutions for the new year abound. I love this time of year because it’s full of promise-- a new start, a new beginning, a time to make new goals and work toward new accomplishments. For many, resolutions revolve around our health, and that can mean a rededication to exercise and physical activity. I LOVE that people take this time to refocus on their health and create new fitness goals, but I want to take a minute to talk about an equally important aspect of an exercise routine- REST and RECOVERY.

Rest and recovery? Really? Yes! When it comes to exercise, some people mistakenly believe that more = better. People feel guilty if they take a day off. But our bodies actually need this time as much as they need the physical activity-- it’s during our rest and recovery days that the body repairs and strengthens itself. All the work you do in your Pilates session is great and necessary, but the benefits from that session are realized by your muscles after the session is over. How is this?

Remember that exercise creates stress on the body, specifically mechanical stress and metabolic stress. Metabolic stress comes from depleting the energy stored in individual muscle cells, while mechanical stress is created by the physical damage to the structures of the muscle proteins. While the body experiences stress during exercise, it’s during the recovery period after exercise that your body repairs muscle cells and replaces the glycogen you used during the workout.

There are two different categories of recovery: short term and long term. Short term recovery occurs in the hours and days immediately following intense exercise, and is the time when our bodies remove chemicals that build up as a result of exercise, and when our soft tissues (tendons, ligaments, muscles) repair.

Ways you can engage in short term recovery:

  • Incorporate a cool down period of 5-10 minutes into your workouts
  • Replenish your energy stores and fluid loss by eating the right post-exercise foods. This means a well-balanced meal of lean protein and healthy carbohydrates within one hour of exercising
  • Incorporate post-exercise massage into your routine. To spoil yourself and help soothe your muscles, I absolutely love using Young Living’s Cool Azul Sports Gel along with the Deep Relief Roll-On. Cool Azul is formulated with a full 10% of pure essential oils to soothe and cool the skin, including Peppermint, Plectranthus Oregano, and Dorado Azul. It’s aloe vera based rather than water based like most other sports massage gels, which means it not only massages into skin better, it hydrates as well! The Deep Relief Roll On is perfect for an on-the-spot massage. Apply its blend of 9 essential oils to muscles and sore joints for a refreshing, cooling sensation and invigorating scent that will inspire greater feelings of energy and positivity to help you stay motivated.

Long term recovery involves planning different intensity levels of workouts into your week. For example, two days of high intensity exercise, two days of moderate intensity exercise, two days of low intensity exercise, and one rest day. The best way to plan out this type of routine at The Pilates Center is through private sessions. This way, we can structure your session to specifically meet the intensity level you’re looking for, and stick to the schedule you’ve developed for yourself.

I am so excited to see what 2020 brings us all!
1 Comment

    Heather Gradke

    I'm a BASI Certified Pilates Instructor by day, somewhat competent housewife by night. I used to have hobbies but then CHILDRENS. I am married to the love of my life and somewhat charismatic Rustin Gradke. I have 4 kids that are wonderful sometimes but mostly they just eat a lot. I'm a lover of God and movement and the occasional bowl of queso.

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